I am posting this to see if it would be of any use for our members
On the 1st October 2019, Wouldn’t Change A Thing are launching a new book produce by Celebrate T21 to support new parents, maternity units, midwives, support groups and more within the UK and beyond.
The publication focuses solely on lived experience typical of the majority of people with Down Syndrome and their families. It seeks to dispel the fear that can consume new parents upon hearing news that their child has Down Syndrome.
The book contains page after page of images of the positive, lived experience of real families from all over the UK who have a member with Down Syndrome. From babies to grown ups, you get a sense of children growing up as you turn the pages of the book. The book also features the stories of some inspirational and successful adults with Down Syndrome from around the world.
This book is brought to you courtesy of #wouldntchangeathing : A parent-led organisation that exists to correct negative, outdated perceptions of the capabilities and quality of life of people with Down Syndrome and their families. Our stated mission is “To create a world where negative, outdated perceptions of Down Syndrome become a thing of the past.”
When deciding on our big project to fundraise for this year, The Wouldn’t Change A Thing Book has been the perfect fit for our mission and has given families a chance to share how they feel with images and words of their choice.
Having fundraised for this project we will look to gift to support groups and new parents.
There is a sneak peak of the book in our shop:
We will be launching the book on our main page on 1st October
Pop along and take a look of the slideshow on launch to see the full book.
As an organisation we are very aware that there are fabulous resources, in many forms, already available and that some support groups will be already using these well and feel no need for additional resource. This is an offer from us to those support groups in need of resource to ensure they are available to as many new/ expectant parents as possible, we strongly feel the more resources available, the more chance we as a community have to support parents in early stages of their journey with Down syndrome. I personally produce new parent baskets for my local support group and cannot wait to add these books to our baskets of homemade blankets, teddies, toiletries, parent letters, local group leaflet, positive about down syndrome info and top blog lists.
If you feel your support group would be able to use these books to support new/expectant parents directly please drop me an email by reply with your postal address. It would be wonderful if groups have strong links with birth units to also have these on ward ready for any new parents or in scan/screening waiting rooms.
Please note: We wish to fund these books for as long as possible, so ask that groups only request what they immediately need. We will happily send out should new parent be signposted to your group in a couple of days once initial despatch is done. Ideally if those wanting the books could request one to start with, but let us know if you have recent new parents you wish to gift too.
As time moves forwards we may need to start charging for the books merely to cover book cost. Currently the books cost £3.08 each. We are selling on our website for £6 with a means to cover the cost of the book and fund another, so we hope to keep the pot going for as long as possible. We have purposefully priced the book low to make it achievable for all to purchase. This is a totally non profit project.
Some groups, organisations and individuals have already asked how they can donate for the books to support their distribution, should you wish to do so this can be done through our PayPal account:
It’s important to say, this is not a request, but information as we have been asked how to donate. We will post out free of charge for as long as possible. Until we have all group requests through it will be impossible to know the demand.
We are a fairly small group of volunteers at Wouldn’t Change A Thing HQ so despatching quantities may take some time, but we will endeavour to get these book to those who want them as soon as possible.
If your group does decide to receive our book we would be delighted to hear any feedback or new parent comments once they are in use.
Any questions please do not hesitate to ask.
Chief Operating Officer
Wouldn’t Change A Thing